Grade of Disability and Perceived Stigma of Leprosy Patients : is there any relationship?
Relationship of Grade of Disability and Perceived Stigma of Leprosy Patients
Keywords:
Explanatory Model Interview Catalogue, Grade of disability, Leprosy, Perceived stigmaAbstract
Abstract Background: Leprosy can remain with residual disabilities and advance slowly. One of the main causes of stigma was the visible disabilities caused by leprosy. Stigma and disability are still problems for handling leprosy. Correlation of disability and stigma in leprosy is well known, but the correlation between the grading of disability towards stigma is still debatable and lack of study. This study aims to determine the relationship between the grade of disability according to WHO (World Health Organization) and the perceived stigma of leprosy patients. Methods: Cross-sectional research methods with consecutive sampling were employed by the researchers to analyze 30 leprosy patients in this observational study. On research participants, parameters such as age, gender, type of leprosy, and disability grade using the WHO classification system were assessed. The Explanatory Model Interview Catalogue (EMIC) score was used to evaluate perceived stigma. The One-Way Anova test is used to examine the relationship between the WHO disability grade and perceived stigma in leprosy patients. Results: The result of this study is that there is no significant relationship between the grade of leprosy disability and perceived stigma, p=0.752. The majority of these studies participants are between the ages of 19 and 40, male, multibacillary leprosy, grade 0 leprosy disability, and have a negative perceived stigma. Conclusion: There is no significant relationship between the grade of leprosy disability and perceived stigma. Keywords: Explanatory Model Interview Catalogue; Grade of disability; Leprosy; Perceived stigma.References
References
Kementerian Kesehatan RI. Buku Pedoman Nasional Pemberantasan Penyakit Kusta. Jakarta: Direktorat Jenderal Pengendalian Penyakit dan Penyehatan Lingkungan. 2014. p. 1‑169.
Astutik E, Gayatri D. Perceived stigma in people affected by leprosy in leprosy village of Sitanala, Banten, Indonesia. Kesmas. 2018;12(4):178–86.
Sermrittirong S, Van Brakel WH. Stigma in leprosy: concepts, causes and determinants. Lepr Rev. 2014;85(1):36–47.
Aagaard-Hansen J, Chaignat CL. Neglected tropical diseases: equity and social determinants. In: Equity, social determinants and public health programmes. Geneva: World Health Organization. 2010:135–58.
Malaviya GN. Deformity and disability prevention. In: Kar KH, Kumar B, ed. IAL Textbook of Leprosy. 2nd ed. London, Churchil Livingstone. 2017:541–59.
Kementerian Kesehatan Republik Indonesia. Hapuskan Stigma dan Diskriminasi terhadap Kusta. InfoDatin Pusat Data dan Informasi Kementrian Kesehatan RI. Kemenkes RI. 2018:1–11.
Luka EEL. Understanding the stigma of leprosy. Southern Sudan Medical Journal. 2010;3(3):45-9
Marahatta SB, Amatya R, Adhikari S, Giri D, Lama S, Kaehler N, et al. Perceived stigma of leprosy among community members and health care providers in Lalitpur district of Nepal: A qualitative study. PLoS ONE. 2018;13(12)
Voorend C, Angermeyer M, Fuzikawa P, Pakasi T, Rensen C, Stevelink S, et al. Guidelines to reduce stigma: How to assess health-related stigma. 2nd ed. Amsterdam: The International Federation of Anti-Leprosy Associations (ILEP) and the Netherlands Leprosy Relief (NLR), London. 2011:11–45
Peters RMH, Dadun, Van Brakel WH, Zweekhorst MBM, Damayanti R, et al. The Cultural Validation of Two Scales to Assess Social Stigma in Leprosy. PLoS Negl Trop Dis. 2018; 8(11)
Kaehler N, Adhikar B, Raut S, Marahatta SB, Chapman RS. Perceived Stigma towards Leprosy among Community Members Living Close to Nonsomboon Leprosy Colony in Thailand. PloS ONE. 2015;10(6)
Morgado FFR, Silveira EMKX, Sales AM, Nascimento LPR, Sarno EN, Nery JAC, et al. Cross-cultural adaptation of the EMIC Stigma Scale for people with leprosy in Brazil. Rev Saude Publica.2017;51:80.
Vellacott EL. Neglected tropical diseases morbidity and disability (NTD) toolkit validation: A cross-sectional validation study of the EMIC stigma scale in Papua, Indonesia. VU University Amsterdam. 2016:1-69.
Thorat DM, Sharma P. Epidemiology. In: Kar KH, Kumar B, ed. IAL Textbook of Leprosy. 2nd ed. London, Churchil Livingstone. 2017:57–76.
Van Brakel WH, Sihombing B, Djarir H, Beise K, Kusumawardhani L, Yulihane R, et al. Disability in people affected by leprosy: the role of impairment, activity, social participation, stigma and discrimination. Glob Health Action. 2012;5:1–11.
Adhikari B, Kaehler N, Chapman RS, Raut S, Roche P. Factors Affecting Perceived Stigma in Leprosy Affected Persons in Western Nepal. PLoS Negl Trop Dis. 2014;8(6):2–9.
Ibikunle P, Nwokeji S. Assessment of stigma among people living with Hansen’s disease in south-east Nigeria. Lepr Rev. 2017;88:43–57
