Evaluation of quality of life in parents of the patients with vitiligo by Persian version of the family dermatology life quality index (FDLQI) in Kerman

Farajzadeh Saeedeh, Safizadeh Hossein, Mohammadi Saman, Khalili Maryam, Amiri Rezvan, Aflatoonian Mahin, Elham Mhammadrezakhani

Abstract


Background  Vitiligo can have negative effects on different aspects of life of the patients and their families including financial and occupational issues, social relationship and selection of leisure time activities. In this study for the first time in Iran we evaluated effects of vitiligo on family members of the patients.

 

Material and Methods We performed a cross sectional study on 150 of family members of the patients with vitiligo in Afzalipour hospital in Kerman. Family Dermatology Life Quality Index (FDLQI) questionnaire was used for measuring quality of life. FDLQI questionnaire was completed by family members of the patients. Data were analyzed with SPSS 18(SPSS Statistics, IBM, Armonk, NY, USA).  We used Pearson correlation test, t-Test and ANOVA for analysis.

 

Results Mean age of the family members was 41.2 years and most of the responders were female (73.3%). Mean score of FDLQI was 6.1±6.1. The highest scores belonged to psychosocial and financial effects. The lowest scores belonged to questions about occupational and educational issues.

 

Conclusion There was a reverse correlation between family dermatology life quality index and patient’s age. Parents and children of the patients with atopic dermatitis had the worst and best quality of life, respectively.

 


Keywords


Quality of life, vitiligo, Persian, family

Full Text:

PDF

References


Lilly E, Lu P.D, Borovicka J.H,Victorson D,Kwasny M.J,West D.P.Development and validation of a vitiligo-specific quality-of-life instrument (VitiQoL). JAAD 2013; 69: e11-8.

Esfandiarpour I, Farajzadeh S. Clinical characteristics of late-onset vitiligo in an Iranian population. Dermatologica Sinica 2012; 30: 43-6.

Mitrevska N.T, Eleftheriadou V, Guarneri F. Quality of life in vitiligo patients. Dermatologic Therapy 2012; 25: S28-31.

Linthorst Homan M.W, Spuls P.L, Korte J,Bos J. D, Sprangers M.A,Wietze Van der Veen J.P. The burden of vitiligo: Patient characteristics associated with quality of life. JAAD 2009; 61: 411-20.

Ghajarzadeh M, Kheirkhah SH, Ghyiasi M. Quality of life and depression in patients with vitiligo. Dermatology and cosmetic 2011; 2(4): 203-9.

Jonathan I. Silverberg, MD, PhD, MPH; NaetteB. Association Between Vitiligo Extent and Distribution and Quality-of-Life Impairment 2013; 149(2): 159-64.

Parsad D, Dogra, S, Kanwar AJ. Quality of life in patients with vitiligo. Health Qual Life outcomes 2003; 1: 58.

Sampogna F, RaskovicD, Juerra L, et al. identificatiun of Categories at risk for hugh quality of life impairment in patients with vitiligo. Br J Dermatol 2008; 159: 351-9.

Wang KY, Wang KH, Zhang ZP. Health-related quality of life and marital quality of vitiligo patients in china. J Eur Acad Dermatol Venereol 2011; 25: 429-35.

Mattoo SK, Handa S, Kaur I, et al. Psychiatric morbidity in vitiligo: prevalence and correlates in India . J Eur Acad Dermatol Venereol 2002; 16: 573-8.

Jonathan I. Silverberg, MD, PhD, MPH; Naette B. Association Between Vitiligo Extent and Distribution and Quality of Life Impairment 2013; 149(2): 159-64.

M.K.A Basra, AY Finlay. The family impact of skin diseases: the Greater Patient concept. Br J Dermatol 2007; 156: 929-37.

Basra M.K.A, Sue-Ho R, Finlay A.Y. Family Dermatology Life Quality Index: measuring the secondary impact of skin disease. Br J Dermatol 2007; 156: 528-38.

Basra M.K.A., Edmunds O., Salek MS., Finlay A.Y. Measurement of family impact of skin disease: further validation of the Family Dermatology Life Quality Index(FDLQI). J Eur Acad Dermatol Venereol 2008; 22: 813-21.

Safizadeh H, Nakhaee N, ShamsiMeymandi S, Pourdamghan N, Basra MK. Preliminary reliability and validity of Persian version of the Family Dermatology Life Quality Index (FDLQI). Qual Life Res. 2014 ; 23(3): 869-75.

Schmid –ott G, Kunsebech HW, Jecht E, et al. stigmatizastion experience, coping and sense of coherence in vitiligo patients. J Eur Acad Dermatol Venereol 2007; 21: 456-61.

Taylor A, Pawaskar M, Taylor S, et al. Prevalence of pigmentary disorders and their impact on quality of life. J Cosmetic Dermatol 2008; 7: 164-8.

Bin Saif GA., AlBalbeesi AO., Binshabaib R., Alsaad D., Kwatra SG., Alzolibani AA, Yosipovitch G. Quality of Life in Family Members of Vitiligo Patients: A Questionnaire Study in Saudi Arabia. Am J Clin Dermatol. 2013; 14: 489-95.

Salsberg JM, Weinstein M, Shear N, Lee M, Pope E. Impact of Cosmetic Camouflage on the Quality of Life of Children With Skin Disease and Their Families. J Cutan Med Surg. 2016; 20(3): 211-5.

Handjani F, Kalafi A. Impact of dermatological diseases on family members of the patients using Family Dermatology Quality Index: A preliminary study in Iran. Iranian Journal of Dermatology 2013; 16: 128-31.

Chernyshov PV, Kaliuzhna LD, Reznikova AA, Basra MK. Comparison of the impairment of family quality of life assessed by disease specific and dermatology specific instruments in children with atopic dermatitis. J Eur Acad Dermatol Venereol. 2015; 29: 1221-4.

Tadros A, Vergou T, Stratigos AJ, Tzavara C, Hletsos M, Katsambas A, Antoniou C.Psoriasis: is it the tip of the iceberg for the quality of life of patients and their families? J Eur Acad Dermatol Venereol 2011; 25(11): 1282-7.

Katugampola RP, Badminton MN, Finlay AY, Whatley S, Woolf J, Mason N, et al. Congenital erythropoietic porphyria: a single observer clinical study of 29 cases. Br J Dermatol 2012; 167(4): 901-13.

Sampogna F, Tabolli S, Di Pietro C, Castiglia D, Zambruno G, Abeni D. The evaluation of family impact of recessive dystrophic epidermolysis bullosa using the Italian version of the Family Dermatology Life Quality Index. J Eur Acad Dermatol Venereol 2013; 27(9): 1151-5.

Martínez García E, AriasSantiago S, ValenzuelaSalas I, GarridoColmenero C, GarcíaMellado V, Buendía EismanA. Quality of life in persons living with psoriasis patients.J Am Acad Dermatol. 2014; 71(2): 302-7

Pustišek N, Vurnek Živković M, Šitum M. Quality of Life in Families with Children with Atopic Dermatitis. Pediatr Dermatol 2016; 33(1): 283-2.


Refbacks

  • There are currently no refbacks.


ISSN: 1560-9014